Yesterday, Dr. D walked into my infusion room. After the unnecessary nice chit-chat, she dropped a bomb. "We're having a hard time finding you a matched donor. Could we test your parents and siblings again?" My heart fell and my hopes to be cured began to wither.
Truly, life has a way of throwing curve balls. I feel like I've been dodging them ever since. Waiting for a donor is a painful process. During the preliminary search, my doctors at NIH said I have possible 132 donors in the US alone and an additional 130 in the international registry. So what happened? Is Dr. D saying that none of these donors match me fully?
I was so angry yesterday. Having a bone-marrow failure really is a test of mind and body, and I feel like I am being pushed to my limit. My patience is so short I could snap at anybody or anyone. I feel that my disease is changing me.
Kepi did offer a calmer perspective that "Dr. D is just making sure there's a plan B in placed in case a fully matched unrelated donor is not found." Perhaps but I didn't want to hear a plan B. I want a non-experimental approach to my cure. I want to be cured period.
Anyway, I am back to being frantic and worried again. I seriously need some good news today or in the next few days.